- The Dementia Newsletter, by elumenEd
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- Discover How Silence Can Strengthen Your Bond with Loved Ones
Discover How Silence Can Strengthen Your Bond with Loved Ones
Also in this edition: the most important news in dementia this week; Ben's Corner: a personal story; a book recommendation with the potential to transform your care
In this edition: |
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📰 The News Caregivers Need This Week 📰
Here are the most important things you need to know about dementia news and research this week.
Research News
New drug could reduce risk of early-onset Alzheimer’s disease (The Independent)
Triangle test caught symptoms of Alzheimer's 12 years early (Daily Express)
Scientists Discover Mysterious New Brain Cells That Could Change How We Treat Alzheimer’s (SciTech Daily)
Your Dentist May Be Able to Identify a New Sign of Alzheimer’s (Yahoo!)
Caregiving and Best Practices
Robot caregiver (Portugal News): The AIERC, a 150kg [330lb] artificial intelligence powered humanoid robot, is a prototype future caregiver for Japan’s rapidly aging population.
Your Loved One Can't Speak — But What Do They Understand? (NextAvenue)
How Seasonal Changes Impact Dementia Sundowning Symptoms (Psychology Today)
Food and the memories it evokes can help comfort dementia patients (Scroll.in)
I do these 3 things every day to keep my brain sharp, says neurologist (CNBC)
One additional story
This article needs some context, but it contains some good news that I want to share.
Much has been made recently of a prediction that there will be a doubling of dementia cases by the year 2050. This article puts that statistic in context. When we look at the big picture with the numbers adjusted for longer lives and population increases, we see that, over the last 40 years, “the percentage of people at a given age who have dementia has dropped by two-thirds.” [emphasis mine] See the full story here:
Ben’s Corner: Active Listening, Uncomfortable Silences
In 2009, I felt like my life ended in a single night. My wife announced she was leaving me and I was a wreck. Unsure of what to do or who to call, I reached out to my clergyman, a catholic priest and Zen teacher named Pat Hawk.
Despite weekly formal, private meetings with Pat in the context of my Zen studies, we had never talked about anything so raw and intimate as this in the years I had known him. I was nervous to be seen in such a state by someone I admired.
When we sat down, I talked and talked and talked. For 45 minutes, he didn’t say a word but his attention never flagged. His listening was so intense and profound, in fact, that it felt like an almost physical presence in the room with us. I’ve never been able to adequately describe this encounter. Even 16 years later, the experience lives beyond words for me.
I had never, and have never again, been listened to so completely. My anger and depression and grief broke down in the presence of his full attention. Such was the power of his silence. It didn’t fix my problems or turn me into an enlightened guru, but it gave me space to breathe and that was a good start.
I have tried to make friends with silence since then. Most of us, me included, have internalized some unspoken rules (see what I did there?) about how and when we speak. We often feel compelled to respond, even when it’s not requested. We insert our voices at every opportunity. We say things that don’t fit, just to fill the space. Then we wonder why we said something “stupid” and start a whole new conversation in our heads that we can’t stop.
I think about this a lot when I’m talking with my mom and trying to communicate through the veil that Alzheimer’s disease has drawn between us. Even though I can’t always understand her, I can always listen. Often, she doesn’t need a response from me: she simply needs my presence as I hear her and validate.
My words have grown difficult for her to understand, too. Practically speaking, my chatter doesn’t add much to her enjoyment of the conversation. My silence, however, allows her to find her voice in those moments and experience our relationship in the way that she can.
In Chuck Palahniuk’s 1996 book Fight Club, he writes, "When people think you're dying, they really, really listen to you, instead of just waiting for their turn to speak." I’m trying to get better at really, really listening to my mom and all of the people I love. They deserve that. We all do.
I’m trying be silent and listen to the birds and the wind, too. When I stop talking, it’s interesting to see how much room there is for the rest of the world to speak to me. How much space can you make for your loved one with dementia by just being still?
My teacher, Pat, passed away in 2012. I still miss him terribly. However, I hear him in the silence he left behind, the gateless gate into myself — and out of my Self — that he showed me that day. His silence cannot be taken from the world. It was his greatest gift to me and I still hear him there. | ![]() Fr. Pat Hawk, Roshi |

A monk listens to a cat purr and the rustling cherry blossoms. What could he say to improve this?
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Up Your Caregiving Game: Best Books for You
Pauline Boss offers a different kind of book for caregivers1
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Do you have a recommendation for suggested reading, watching, or listening? Send it to [email protected] and if I pick your suggestion I’ll credit you in the Dementia Newsletter that week.
Hi! I’m Ben, and I’m the author of this newsletter as well as a new book on Amazon: Creating Purposeful Engagement.
Caring for a loved one with dementia can feel overwhelming, especially when it comes to keeping them engaged in daily life. In my new book, Creating Purposeful Engagement, I’ll guide you through practical, reliable strategies to spark meaningful moments of connection—whether through conversation, activities, or shared experiences.
Learn how to confidently create these rewarding interactions and bring more joy to both your loved one’s life and your own. Available now on Amazon—click to get your copy today!
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I’ve been a dementia professional for over 20 years, but the fight against this disease has become much more personal for me as I am engaged in my mother’s journey with Alzheimer’s disease. I started The Dementia Newsletter as well as it’s parent company, elumenEd, to help caregivers, specifically home and family caregivers, gain access to the very best training and information available at an affordable price.
At The Dementia Newsletter, we’re dementia professionals but we’re not medical doctors or lawyers. The information provided is for general informational purposes only and should not be considered as medical or legal advice. Always consult with a qualified healthcare professional for medical diagnosis, treatment, or any health-related concerns and consult with a lawyer regarding any legal matters.
1 I’m suggesting books through the Amazon “affiliate” program. This did NOT affect the choice of any particular book. These are my top picks for The Dementia Newsletter this week! If you pick up a copy of a book through this program, buying it through the link above helps to support the newsletter, and you still pay the same price. Happy reading!
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